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Updated code set #203

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merged 1 commit into from Mar 15, 2024
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Updated code set #203

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13 changes: 11 additions & 2 deletions shared/clinical-code-sets/conditions/pagets-disease/1/README.md
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@@ -1,15 +1,24 @@
# Paget's disease
# Paget's disease of bone.

Any code indicating a diagnosis of paget's disease.
Any code indicating a diagnosis of paget's disease of bone. NB this does not include "paget's disease of nipple" and "extramammary paget's disease" which are unrelated (just named after the same person who identified them).

## Prevalence log

By examining the prevalence of codes (number of patients with the code in their record) broken down by clinical system, we can attempt to validate the clinical code sets and the reporting of the conditions. Here is a log for this code set.

The prevalence range `0.02% - 0.05%` suggests that this code set is reasonably well defined, but is either a rare condition or not often recorded in practice.

_Update **2024-03-15**: Prevalence now 0.02% - 0.03%._

| Date | Practice system | Population | Patients from ID | Patient from code |
| ---------- | --------------- | ---------- | ---------------: | ----------------: |
| 2022-12-02 | EMIS | 2437477 | 681 (0.0279%) | 704 (0.0289%) |
| 2022-12-02 | TPP | 198613 | 62 (0.0312%) | 109 (0.0549%) |
| 2022-12-02 | Vision | 327022 | 75 (0.0229%) | 74 (0.0226%) |
| 2024-03-15 | EMIS | 2526522 | 651 (0.0258%) | 652 (0.0258%) |
| 2024-03-15 | TPP | 201758 | 59 (0.0292%) | 61 (0.0302%) |
| 2024-03-15 | Vision | 335186 | 72 (0.0215%) | 72 (0.0215%) |

## Audit log

- Find_missing_codes last run 2024-03-15
11 changes: 10 additions & 1 deletion shared/clinical-code-sets/conditions/pagets-disease/1/pagets-disease.ctv3.txt
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Expand Up @@ -24,4 +24,13 @@ N310y Paget's disease OS
N310z Paget's disease NOS
N311. Osteitis deformans associated with diseases EC
N3110 Osteitis deformans in neoplastic disease
NyuCD [X]Osteitis deformans in neoplastic diseases classified elsewhere
NyuCD [X]Osteitis deformans in neoplastic diseases classified elsewhere
N3104 Paget's disease-coccyx
N310B Paget's disease-metacarpal
N310C Paget's disease-phalanx of finger or thumb
N310J Paget's disease-calcaneum
N310K Paget's disease-talus
N310M Paget's disease-metatarsal
N310N Paget's disease-phalanx of toe
X20Sp Paget's disease of jaw
Xa7ns Pagets disease - hip
17 changes: 16 additions & 1 deletion shared/clinical-code-sets/conditions/pagets-disease/1/pagets-disease.emis.txt
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Expand Up @@ -24,4 +24,19 @@
^ESCTPA482018 Paget disease-fibula
^ESCTPA482027 Paget's disease of skull
^ESCTPA482028 Paget disease of skull
^ESCTPA482031 Paget disease-multiple sites
^ESCTPA482031 Paget disease-multiple sites
^ESCTOS419307 Osteitis deformans without bone tumour
^ESCTOS419308 Osteitis deformans without bone tumor
^ESCTOS507540 Osteitis deformans of jaw
^ESCTOS750378 Osteoporosis circumscripta
^ESCTPA481991 Paget disease-coccyx
^ESCTPA482005 Paget disease-metacarpal
^ESCTPA482007 Paget disease-phalanx of finger or thumb
^ESCTPA482020 Paget disease-calcaneum
^ESCTPA482022 Paget disease-talus
^ESCTPA482024 Paget disease-metatarsal
^ESCTPA482026 Paget disease-phalanx of toe
^ESCTPA507539 Paget's disease of jaw
^ESCTPA507541 Paget disease of jaw
^ESCTPA588812 Pagets disease - hip
^ESCTSP788085 Spastic paraplegia with Paget disease of bone syndrome
7 changes: 7 additions & 0 deletions shared/clinical-code-sets/conditions/pagets-disease/1/pagets-disease.readv2.txt
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Expand Up @@ -25,3 +25,10 @@ N310A00 Paget's disease-carpal bone
N311000 Osteitis deformans in neoplastic disease
N310L00 Paget's disease-other tarsal bone
NyuCD00 [X]Osteitis deformans in neoplastic diseases classified elsewhere
N310400 Paget's disease-coccyx
N310B00 Paget's disease-metacarpal
N310C00 Paget's disease-phalanx of finger or thumb
N310J00 Paget's disease-calcaneum
N310K00 Paget's disease-talus
N310M00 Paget's disease-metatarsal
N310N00 Paget's disease-phalanx of toe
19 changes: 18 additions & 1 deletion shared/clinical-code-sets/conditions/pagets-disease/1/pagets-disease.snomed.txt
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203355007 Osteitis deformans associated with diseases EC (disorder)
203356008 Osteitis deformans in neoplastic disease (disorder)
2089002 Osteitis deformans (disorder)
33681003 Osteosarcoma in Paget's disease of bone (morphologic abnormality)
33681003 Osteosarcoma in Paget's disease of bone (morphologic abnormality)
314961000119103 Paget disease of multiple vertebra (disorder)
726622002 Spastic paraplegia with Paget disease of bone syndrome (disorder)
235117006 Paget's disease of jaw (disorder)
698047001 Osteoporosis circumscripta (disorder)
203350002 Paget's disease-phalanx of toe (disorder)
203349002 Paget's disease-metatarsal (disorder)
203347000 Paget's disease-talus (disorder)
203346009 Paget's disease-calcaneum (disorder)
314941000119102 Paget disease of right femur (disorder)
315051000119100 Paget disease of left femur (disorder)
301027009 Pagets disease - hip (disorder)
203331002 Paget's disease-coccyx (disorder)
203339000 Paget's disease-phalanx of finger or thumb (disorder)
203338008 Paget's disease-metacarpal (disorder)
1077851000119108 Paget disease of right scapula (disorder)
1077861000119105 Paget disease of left scapula (disorder)
111254007 Osteitis deformans without bone tumor (disorder)