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Code set updated (#202)
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17 changes: 13 additions & 4 deletions shared/clinical-code-sets/conditions/dementia/1/README.md
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Expand Up @@ -2,17 +2,26 @@

Any code indicating that a person has dementia, including Alzheimer's disease.

Code set from https://www.opencodelists.org/codelist/opensafely/dementia-complete/48c76cf8/
Code set from https://www.opencodelists.org/codelist/opensafely/dementia-complete/48c76cf8/ supplemented with codes from the NHS PCD refsets.

## Prevalence log

By examining the prevalence of codes (number of patients with the code in their record) broken down by clinical system, we can attempt to validate the clinical code sets and the reporting of the conditions. Here is a log for this code set. The prevalence range `0.67% - 0.81%` suggests that this code set is likely well defined.

_Update **2024-03-15**: Prevalence now 0.83% - 0.99%._

| Date | Practice system | Population | Patients from ID | Patient from code |
| ---------- | --------------- | ---------- | ---------------: | ----------------: |
| 2022-12-20 | EMIS | 2438146 | 19770 (0.811%) | 21772 (0.893%) |
| 2022-12-20 | TPP | 198637 | 1427 (0.718%) | 7445 (3.75%) |
| 2022-12-20 | Vision | 327196 | 2244 (0.686%) | 2265 (0.692%) |
| 2024-02-26 | EMIS | 2522441 | 27712 (1.1%) | 27745 (1.1%) |
| 2024-02-26 | TPP | 201679 | 2216 (1.1%) | 1872 (0.928%) |
| 2024-02-26 | Vision | 334812 | 3169 (0.947%) | 3170 (0.947%) |
| 2024-02-26 | EMIS | 2522441 | 27712 (1.1%) | 27745 (1.1%) |
| 2024-02-26 | TPP | 201679 | 2216 (1.1%) | 1872 (0.928%) |
| 2024-02-26 | Vision | 334812 | 3169 (0.947%) | 3170 (0.947%) |
| 2024-03-15 | EMIS | 2526522 | 24910 (0.986%) | 24994 (0.989%) |
| 2024-03-15 | TPP | 201758 | 1928 (0.956%) | 1948 (0.966%) |
| 2024-03-15 | Vision | 335186 | 2772 (0.827%) | 2780 (0.829%) |

## Audit log

- Find_missing_codes last run 2024-03-15
9 changes: 7 additions & 2 deletions shared/clinical-code-sets/conditions/dementia/1/dementia.ctv3.txt
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Expand Up @@ -135,5 +135,10 @@ Y9086 Senile dementia - simple type
Y9087 Senile dementia-acute confused
Eu106 [X]Korsakov's psychosis, alcohol-induced
Eu107 [X]Alcoholic dementia NOS
XE17j Alzheimer's disease
XE1aI Korsakov psychosis
E02y1 Drug-induced dementia
F112. Senile degeneration of brain
X003N Familial fatal insomnia
X005A Dialysis encephalopathy
X50Hu Amelocerebrohypohidrotic syndrome
X70MA Juvenile general paresis
XE2b7 Post-concussional syndrome
190 changes: 190 additions & 0 deletions shared/clinical-code-sets/conditions/dementia/1/dementia.emis.txt
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Expand Up @@ -197,4 +197,194 @@ EMISNQVA13 Variant Creutzfeldt-Jakob disease
^ESCTSU396465 Subcortical arteriosclerotic encephalopathy
^ESCTTR500574 Traumatic encephalopathy
^ESCTWE363009 Wernicke-Korsakoff syndrome
^ESCT1164104 Dementia following injury caused by exposure to ionising radiation
^ESCT1164105 Postradiation dementia
^ESCT1164106 Dementia following injury caused by exposure to ionizing radiation
^ESCT1169048 Dementia due to prion disease
^ESCT1169049 Dementia due to and following injury of head
^ESCT1169441 Subcortical dementia
^ESCT1171771 Presenile dementia with psychosis
^ESCT1171774 Predominantly cortical vascular dementia
^ESCT1191489 [X]Dementia in Alzheimer's dis, atypical or mixed type
^ESCT1237064 Dementia with mixed etiology
^ESCT1237065 MVAD - Mixed vascular Alzheimer dementia
^ESCT1237066 Dementia with mixed aetiology
^ESCT1353008 PRKAR1B-related neurodegenerative dementia with intermediate filaments
^ESCT1353009 Protein kinase cAMP-dependent type I regulatory subunit beta-related neurodegenerative dementia with intermediate filaments
^ESCT1362778 Familial dementia British type
^ESCT1362879 Familial dementia Danish type
^ESCT1390962 Aggression due to dementia
^ESCT1390963 Aggression in dementia
^ESCT1390964 Agitation due to dementia
^ESCT1390965 Agitation in dementia
^ESCT1391007 Dementia caused by volatile inhalant
^ESCT1391008 Dementia due to pellagra
^ESCT1391306 Disinhibited behaviour due to dementia
^ESCT1393438 Cortical vascular dementia
^ESCT1393718 Amyotrophic lateral sclerosis, parkinsonism, dementia complex
^ESCT1393719 Amyotrophic lateral sclerosis, parkinsonism, dementia of Guam syndrome
^ESCT1393722 PDALS (parkinsonism, dementia, amyotrophic lateral sclerosis) complex
^ESCT1394318 Classical sporadic Creutzfeldt-Jakob disease
^ESCT1394341 Dementia due to carbon monoxide poisoning
^ESCT1394342 Dementia due to iron deficiency
^ESCT1395118 Creutzfeldt-Jakob Disease caused by human growth hormone
^ESCT1395119 Human-growth hormone ingestion-related Creutzfeldt-Jakob Disease
^ESCT1409128 Dementia with progressive multifocal leucoencephalopathy
^ESCT1409129 Dementia co-occurrent and due to progressive multifocal leucoencephalopathy
^ESCT1409378 Familial British dementia with amyloid angiopathy
^ESCTAC781444 Acquired prion disease
^ESCTAG324065 Age-related degeneration of brain
^ESCTAL266745 Alzheimers dementia, early onset, with depressed mood
^ESCTAL292995 Alzheimers dementia, late onset, with depressive mood
^ESCTAL339290 Alzheimers dementia, late onset, with delusions
^ESCTAL802462 Altered behaviour co-occurrent and due to Pick's disease
^ESCTAL802463 Altered behavior co-occurrent and due to Pick's disease
^ESCTAL802464 Altered behaviour in Huntington's dementia
^ESCTAL802465 Altered behavior in Huntington's dementia
^ESCTAL802466 Altered behavior in dementia due to Huntington chorea
^ESCTAL803079 Altered behaviour in Alzheimer's disease
^ESCTAL803080 Altered behavior in Alzheimer's disease
^ESCTAL803081 Altered behavior in Alzheimer disease
^ESCTAL803082 Altered behavior in Alzheimers disease
^ESCTAL804495 Alzheimers dementia with depressed mood
^ESCTAL804498 Alzheimer's disease co-occurrent with delirium
^ESCTAM416492 Amelocerebrohypohidrotic syndrome
^ESCTBE775512 Behavioural variant of frontotemporal dementia
^ESCTBE775513 Behavioral variant of frontotemporal dementia
^ESCTBE989613 Behavioural disturbance co-occurrent and due to late onset Alzheimer dementia
^ESCTBE989614 Behavioral disturbance co-occurrent and due to late onset Alzheimer dementia
^ESCTCH755962 CHMP2B-related frontotemporal dementia
^ESCTCH755964 Chromosome 3-linked frontotemporal dementia
^ESCTDE257574 Dementia of the Alzheimer's type, with late onset, with delirium
^ESCTDE257575 Dementia Alzheimers type, late onset with delirium
^ESCTDE260328 Dementia of the Alzheimer's type, with early onset, uncomplicated
^ESCTDE266744 Dementia of the Alzheimer's type, with early onset, with depressive mood
^ESCTDE292994 Dementia of the Alzheimer's type, with late onset, with depressive mood
^ESCTDE338438 Dementia of the Alzheimer's type, with early onset, with delusions
^ESCTDE339289 Dementia of the Alzheimer's type, with late onset, with delusions
^ESCTDE355841 Dementia of the Alzheimer's type, with early onset, with delirium
^ESCTDE357505 Dementia of the Alzheimer's type, with late onset, uncomplicated
^ESCTDE384966 Dementia paralytica juvenilis
^ESCTDE751072 Dementia associated with cerebral lipidosis
^ESCTDE751073 Dementia associated with normal pressure hydrocephalus
^ESCTDE751074 Dementia associated with multiple sclerosis
^ESCTDE751196 Dementia associated with neurosyphilis
^ESCTDE751197 Dementia associated with viral encephalitis
^ESCTDE751279 Dementia associated with cerebral anoxia
^ESCTDE751507 Dementia in remission
^ESCTDE771038 Dementia co-occurrent with human immunodeficiency virus infection
^ESCTDE783882 Dementia co-occurrent and due to neurocysticercosis
^ESCTDE783883 Dementia caused by toxin
^ESCTDE783884 Dementia due to metabolic abnormality
^ESCTDE783885 Dementia due to chromosomal anomaly
^ESCTDE786113 Dementia due to disorder of central nervous system
^ESCTDE786114 Dementia due to infectious disease
^ESCTDE787476 Delirium co-occurrent with dementia
^ESCTDE787477 Delirium superimposed on dementia
^ESCTDE795509 Dementia caused by heavy metal exposure
^ESCTDE795510 Dementia due to primary malignant neoplasm of brain
^ESCTDE795511 Dementia due to chronic subdural haematoma
^ESCTDE795512 Dementia due to chronic subdural hematoma
^ESCTDE795513 Dementia due to herpes encephalitis
^ESCTDE795514 Dementia with progressive multifocal leukoencephalopathy
^ESCTDE795515 Dementia co-occurrent and due to progressive multifocal leukoencephalopathy
^ESCTDE795516 Dementia with Down syndrome
^ESCTDE795517 Dementia co-occurrent and due to Down syndrome
^ESCTDE796928 Dementia of the Alzheimer type with behavioural disturbance
^ESCTDE796929 Dementia of the Alzheimer type with behavioral disturbance
^ESCTDE796937 Dementia with behavioural disturbance
^ESCTDE796938 Dementia with behavioral disturbance
^ESCTDE802467 Dementia due to multiple sclerosis with altered behaviour
^ESCTDE802468 Dementia due to multiple sclerosis with altered behavior
^ESCTDE803175 Dementia due to Parkinson's disease
^ESCTDE803176 Dementia due to Parkinsons disease
^ESCTDE803177 Dementia due to Parkinson disease
^ESCTDE804101 Dementia due to Rett's syndrome
^ESCTDE804491 Delusions in Alzheimer's disease
^ESCTDE804492 Delusions in Alzheimers disease
^ESCTDE804493 Delusions in Alzheimer disease
^ESCTDE804494 Depressed mood in Alzheimer's disease
^ESCTDE804496 Depressed mood in Alzheimer disease
^ESCTDI264906 Dialysis dementia
^ESCTDI264907 Dialysis encephalopathy syndrome
^ESCTDI264908 Dialysis encephalopathy
^ESCTEA801440 Early onset dementia with delusions
^ESCTEA803291 Early onset Alzheimer's disease with behavioural disturbance
^ESCTEA803292 Early onset Alzheimer's disease with behavioral disturbance
^ESCTEA803293 Early onset Alzheimers disease with behavioral disturbance
^ESCTEA803294 Early onset Alzheimer disease with behavioral disturbance
^ESCTEP416490 Epilepsy, dementia and amelogenesis imperfecta
^ESCTEP416491 Epilepsy, mental deterioration and yellow teeth
^ESCTEP802469 Epileptic dementia with behavioural disturbance
^ESCTEP802470 Epileptic dementia with behavioral disturbance
^ESCTFA385338 Fatal familial insomnia
^ESCTFA385340 Familial fatal insomnia
^ESCTFA756028 Familial encephalopathy with neuroserpin inclusion bodies
^ESCTFA756029 Familial dementia with neuroserpin inclusion bodies
^ESCTFA756054 Familial Pick's disease
^ESCTFA773790 Familial Creutzfeldt-Jakob
^ESCTFA781383 Familial Alzheimer-like prion disease
^ESCTFC773791 fCJD (Familial Creutzfeldt-Jakob disease)
^ESCTFF385339 FFI - Familial fatal insomnia
^ESCTFR755963 Frontotemporal dementia with gene located on 3p11
^ESCTFR756041 Frontotemporal lobar degeneration
^ESCTFR756053 Frontotemporal dementia with parkinsonism-17
^ESCTFT756057 FTDP-17 - Frontotemporal dementia with parkinsonism 17
^ESCTGR756039 GRN-related frontotemporal dementia
^ESCTHA797312 Hallucinations co-occurrent and due to late onset dementia
^ESCTHE756040 Hereditary dysphasic disinhibition dementia
^ESCTIA773559 Iatrogenic Jakob-Creutzfeldt disease
^ESCTIA773560 Iatrogenic Creutzfeldt-Jakob disease
^ESCTIB757762 IBMPFD - Inclusion body myopathy with early onset Paget disease and frontotemporal dementia
^ESCTIN302942 Inhalant-induced persisting dementia
^ESCTIN757757 Inclusion body myopathy with early-onset Paget disease and frontotemporal dementia
^ESCTIN773792 Inherited Creutzfeldt-Jakob disease
^ESCTIS784063 Ischaemic vascular dementia
^ESCTIS784064 Ischemic vascular dementia
^ESCTMI802420 Mixed dementia
^ESCTMU266460 Multi-infarct dementia with delirium
^ESCTMU266462 Multi infarct dementia with delirium
^ESCTMU272293 Multi-infarct dementia with depression
^ESCTMU291232 Multi-infarct dementia with delusions
^ESCTMU291234 Multi infarct dementia with delusions
^ESCTMU365367 Multi-infarct dementia, uncomplicated
^ESCTMU365369 Multi infarct dementia, uncomplicated
^ESCTMU803324 Multi-infarct dementia due to atherosclerosis
^ESCTMU803325 Multi infarct dementia with atherosclerosis
^ESCTNO783407 Non-amnestic Alzheimer disease
^ESCTOR695730 Organic dementia associated with AIDS
^ESCTOR695731 Organic dementia associated with acquired immunodeficiency syndrome
^ESCTPA773701 Parkinsonism with dementia of Guadeloupe
^ESCTPA773702 Parkinsonism co-occurrent with dementia of Guadeloupe
^ESCTPO751142 Post-traumatic dementia with behavioural change
^ESCTPO751143 Post-traumatic dementia with behavioral change
^ESCTPR257573 Primary degenerative dementia of the Alzheimer type, senile onset, with delirium
^ESCTPR260327 Primary degenerative dementia of the Alzheimer type, presenile onset, uncomplicated
^ESCTPR266743 Primary degenerative dementia of the Alzheimer type, presenile onset, with depression
^ESCTPR292993 Primary degenerative dementia of the Alzheimer type, senile onset, with depression
^ESCTPR338437 Primary degenerative dementia of the Alzheimer type, presenile onset, with delusions
^ESCTPR339288 Primary degenerative dementia of the Alzheimer type, senile onset, with delusions
^ESCTPR355840 Primary degenerative dementia of the Alzheimer type, presenile onset, with delirium
^ESCTPR357504 Primary degenerative dementia of the Alzheimer type, senile onset, uncomplicated
^ESCTPR696469 Presenile dementia associated with AIDS
^ESCTPR696470 Presenile dementia associated with acquired immunodeficiency syndrome
^ESCTPR751512 Primary degenerative dementia of the Alzheimer type, senile onset in remission
^ESCTPR751513 Primary degenerative dementia of the Alzheimer type, presenile onset in remission
^ESCTPR770469 Presenile dementia co-occurrent with human immunodeficiency virus infection
^ESCTPR801439 Presenile dementia with delusions
^ESCTPS419613 Psychoactive substance-induced organic dementia
^ESCTPS419614 Psychoactive substance induced dementia
^ESCTRA784352 Rapidly progressive dementia
^ESCTRI775042 Right temporal atrophy variant frontotemporal dementia
^ESCTSE634803 Senile dementia with delusion
^ESCTSE634804 Senile delusion
^ESCTVA266461 Vascular dementia, with delirium
^ESCTVA272294 Vascular dementia, with depressive mood
^ESCTVA291233 Vascular dementia, with delusions
^ESCTVA365368 Vascular dementia, uncomplicated
^ESCTVA751506 Vascular dementia in remission
^ESCTVA808923 Vascular dementia with behavioural disturbance
^ESCTVA808924 Vascular dementia with behavioral disturbance
^ESCTVA990225 Vascular dementia without behavioural disturbance
^ESCTVA990226 Vascular dementia without behavioral disturbance

7 changes: 6 additions & 1 deletion shared/clinical-code-sets/conditions/dementia/1/dementia.readv2.txt
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Expand Up @@ -103,4 +103,9 @@ F11x700 Cerebral degeneration due to Jakob - Creutzfeldt disease
F11x800 Cerebral degeneration due to progressive multifocal leucoencephalopathy
F21y200 Binswanger's disease
F21y211 Binswanger's encephalopathy
Fyu3000 [X]Other Alzheimer's disease
Fyu3000 [X]Other Alzheimer's disease
A941.00 General paresis - neurosyphilis
E02y100 Drug-induced dementia
E2A2.00 Post-concussion syndrome
Eu06200 [X]Postconcussional syndrome
F112.00 Senile degeneration of brain

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