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policy 4.ttl
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policy 4.ttl
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@prefix rdf: <http://www.w3.org/1999/02/22-rdf-syntax-ns#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .
@prefix sd: <http://www.w3.org/ns/sparql-service-description#> .
@prefix v: <http://rdf.data-vocabulary.org/#> .
@prefix odrl: <http://www.w3.org/ns/odrl/2/> .
@prefix occe: <https://w3id.org/odrl-occe/> .
@prefix dpv: <https://w3id.org/dpv#> .
@prefix obo: <http://purl.obolibrary.org/obo/> .
@prefix dct: <http://purl.org/dc/terms/> .
@prefix cc: <http://creativecommons.org/ns#> .
@prefix vcard: <http://www.w3.org/2006/vcard/ns#> .
@prefix this: <https://example.com/> .
<https://example.com/policies/4> rdf:type odrl:Offer ;
dct:creator "Oussama Benhamed"^^xsd:string ;
dct:issued "2023-06-01"^^xsd:date ;
odrl:permission <https://example.com/policies/4/permissions/1>, <https://example.com/policies/4/permissions/2>, <https://example.com/policies/4/permissions/3> ;
odrl:prohibition <https://example.com/policies/4/prohibitions/1>, <https://example.com/policies/4/prohibitions/2>, <https://example.com/policies/4/prohibitions/3> ;
odrl:obligation <https://example.com/policies/4/obligations/1>, <https://example.com/policies/4/obligations/2>, <https://example.com/policies/4/obligations/3>, <https://example.com/policies/4/obligations/4>, <https://example.com/policies/4/obligations/5>, <https://example.com/policies/4/obligations/6>, <https://example.com/policies/4/obligations/7>, <https://example.com/policies/4/obligations/8>, <https://example.com/policies/4/obligations/9>, <https://example.com/policies/4/obligations/10>, <https://example.com/policies/4/obligations/11>, <https://example.com/policies/4/obligations/12>, <https://example.com/policies/4/obligations/13> .
# Permissions
## Permission 1:
# Translation:
<https://example.com/policies/4/permissions/1> dct:subject "clinical_research_use" ;
odrl:target <https://example.com/policies/4/permissions/1/targets/1> ;
odrl:action <https://example.com/policies/4/permissions/1/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/permissions/1/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/permissions/1/actions/1> rdf:value odrl:use ;
odrl:refinement <https://example.com/policies/4/permissions/1/actions/1/refinements/1> .
<https://example.com/policies/4/permissions/1/actions/1/refinements/1> odrl:leftOperand odrl:purpose ;
odrl:operator odrl:isA ;
odrl:rightOperand <http://purl.obolibrary.org/obo/GSSO_012789> . # Clinical research
## Permission 2: The biological samples and associated data can be used exclusively for the performance of diagnostic tests and/ or scientific research carried out in the context of the provider disease area, but never for profit.
# Translation:
<https://example.com/policies/4/permissions/2> dct:subject "disease_specific_use" ;
odrl:target <https://example.com/policies/4/permissions/2/targets/1> ;
odrl:action <https://example.com/policies/4/permissions/2/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/permissions/2/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/permissions/2/actions/1> rdf:value odrl:use ;
odrl:refinement <https://example.com/policies/4/permissions/2/actions/1/refinements/1> .
<https://example.com/policies/4/permissions/2/actions/1/refinements/1> odrl:leftOperand odrl:purpose ;
odrl:operator odrl:isAnyOf ;
odrl:rightOperand <http://purl.obolibrary.org/obo/DUO_0000043>, <http://purl.obolibrary.org/obo/DUO_0000007> . # Clinical care use / Disease specific research
## Permission 3: The Recipient Scientist must restitute the results to IPGB to allow the interpretation focused on Incontinentia pigmenti disease.
# Translation:
<https://example.com/policies/4/permissions/3> dct:subject "use_as_control" ;
odrl:target <https://example.com/policies/4/permissions/3/targets/1> ;
odrl:action <https://example.com/policies/4/permissions/3/actions/1> ;
odrl:duty <https://example.com/policies/4/permissions/3/duties/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/permissions/3/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/permissions/3/actions/1> rdf:value occe:useAsReference .
<https://example.com/policies/4/permissions/3/duties/1> odrl:target <https://example.com/policies/4/permissions/3/duties/1/targets/1> ;
odrl:action <https://example.com/policies/4/permissions/3/duties/1/actions/1> ;
occe:sharedParty <https://example.com/policies/4/permissions/3/duties/1/sharedParties/1> .
<https://example.com/policies/4/permissions/3/duties/1/sharedParties/1> a <http://purl.obolibrary.org/obo/SCDO_0008688>, odrl:Party ;
vcard:fn "Incontinentia Pigmenti Genetic Biobank (IPGB)"^^xsd:string .
<https://example.com/policies/4/permissions/3/duties/1/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C20200>, odrl:AssetCollection ; # Outcome
dct:title "Results"^^xsd:string .
<https://example.com/policies/4/permissions/3/duties/1/actions/1> rdf:value odrl:share .
# Prohibitions
## Prohibition 1: The use of documents or samples deposited in the provider, always provided in unidentified form, must in no way be used to identify or re-identify one or more individuals from whom they were taken.
# Translation:
<https://example.com/policies/4/prohibitions/1> dct:subject "reidentification_of_individuals_without_irp" ;
odrl:target <https://example.com/policies/4/prohibitions/1/targets/1> ;
odrl:action <https://example.com/policies/4/prohibitions/1/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/prohibitions/1/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/prohibitions/1/actions/1> rdf:value <http://purl.obolibrary.org/obo/T4FS_0000501> ; # De-anonymization
odrl:refinement <https://example.com/policies/4/prohibitions/1/actions/1/refinements/1> .
<https://example.com/policies/4/prohibitions/1/actions/1/refinements/1> odrl:leftOperand <http://purl.obolibrary.org/obo/NCIT_C25548> ; # Involvment
odrl:operator odrl:isNoneOf ;
odrl:rightOperand this:Data_Center_01 .
## Prohibition 2: The Recipient Scientist agrees to use this Material solely for application in the non-commercial research. Its distribution is limited to scientists at non-profit institutions solely for use in their own research.
# Translation:
<https://example.com/policies/4/prohibitions/2> dct:subject "profit_motivated_use" ;
odrl:target <https://example.com/policies/4/prohibitions/2/targets/1> ;
odrl:action <https://example.com/policies/4/prohibitions/2/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/prohibitions/2/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/prohibitions/2/actions/1> rdf:value cc:CommercialUse .
## Prohibition 3: The Recipient Scientist agrees to use this Material solely for application in the non-commercial research. Its distribution is limited to scientists at non-profit institutions solely for use in their own research.
# Translation:
<https://example.com/policies/4/prohibitions/3> dct:subject "use_by_commercial_entity" ;
odrl:target <https://example.com/policies/4/prohibitions/3/targets/1> ;
odrl:action <https://example.com/policies/4/prohibitions/3/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/prohibitions/3/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/prohibitions/3/actions/1> rdf:value cc:CommercialUse .
# Obligations
## Obligation 1:
# Translation: The provider operates according to GDPR: the samples are transferred and used exclusively in coded form. The provider is obligated to identify or re-identify of an individual to allow a physician to feedback results or incidental findings.
<https://example.com/policies/4/obligations/1> dct:subject "reidentification_of_individuals_with_irp" ;
odrl:target <https://example.com/policies/1/obligations/1/targets/1> ;
odrl:action <https://example.com/policies/1/obligations/1/actions/1> ;
odrl:constraint <https://example.com/policies/1/obligations/1/constraints/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/1/obligations/1/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string ;
odrl:refinement <https://example.com/policies/1/obligations/1/targets/1/refinements/1> .
<https://example.com/policies/1/obligations/1/targets/1/refinements/1> odrl:leftOperand <http://edamontology.org/format_1915> ; # Format
odrl:operator odrl:isA ;
odrl:rightOperand <http://purl.obolibrary.org/obo/NCIT_C68756> . # Coded data and samples
<https://example.com/policies/1/obligations/1/actions/1> rdf:value <http://purl.obolibrary.org/obo/T4FS_0000501> ; # De-anonymization
odrl:refinement <https://example.com/policies/1/obligations/1/actions/1/refinements/1> .
<https://example.com/policies/1/obligations/1/actions/1/refinements/1> odrl:leftOperand odrl:purpose ;
odrl:operator odrl:isAnyOf ;
odrl:rightOperand <http://purl.obolibrary.org/obo/NCIT_C20200>, <http://purl.obolibrary.org/obo/OMIT_0022412> . # Outcome / Incidental findings
<https://example.com/policies/1/obligations/1/constraints/1> odrl:leftOperand <http://purl.obolibrary.org/obo/NCIT_C64950> ; # Follow
odrl:operator odrl:isA ;
odrl:rightOperand <https://w3id.org/dpv/dpv-legal#EU-GDPR> . # GDPR
## Obligation 2: The collaboration is obligatory because the staff of the provider is group leader in the research and studies of the provider disease area. Moreover the provider must be cited in the acknowledgments of any scientific production.
# Translation:
<https://example.com/policies/4/obligations/2> dct:subject "collaboration" ;
odrl:action <https://example.com/policies/4/obligations/2/actions/1>, <https://example.com/policies/4/obligations/2/actions/2> ;
odrl:assigner this:Data_Center_01 ;
occe:collaboratingParty this:Data_Center_01 ;
occe:acknowledgedParty this:Data_Center_01 .
<https://example.com/policies/4/obligations/2/actions/1> rdf:value <http://purl.obolibrary.org/obo/NCIT_C73529> . # Collaboration
<https://example.com/policies/4/obligations/2/actions/2> rdf:value cc:Attribution .
## Obligation 3: The investigation must be carried out only in the context of medical and scientific research projects approved by an Ethics Committee.
# Translation:
<https://example.com/policies/4/obligations/3> dct:subject "ethics_approval" ;
odrl:target <https://example.com/policies/4/obligations/3/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/3/actions/1> ;
odrl:assigner this:Data_Center_01 ;
odrl:sharedParty this:Data_Center_01 .
<https://example.com/policies/4/obligations/3/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C70800>, odrl:Asset ; # Institutional Review Board Approval
dct:title "Institutional Review Board approval document"^^xsd:string .
<https://example.com/policies/4/obligations/3/actions/1> rdf:value odrl:share .
## Obligation 4 : The Recipient Scientist must pay any shipping fees.
# Translation: Obligation to pay fees for biospecimen Shipping.
<https://example.com/policies/4/obligations/4> dct:subject "fees" ;
odrl:action <https://example.com/policies/4/obligations/4/actions/1> ;
odrl:constraint <https://example.com/policies/4/obligations/4/constraints/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/4/actions/1> rdf:value odrl:compensate .
<https://example.com/policies/4/obligations/4/constraints/1> odrl:leftOperand odrl:purpose ;
odrl:operator odrl:isA ;
odrl:rightOperand <http://purl.obolibrary.org/obo/NCIT_C179747> . # Biospecimen Shipping
## Obligation 5: The transfer of data to non-European countries must ensure the same protections of the GDPR in European countries.
# Translation: Everyone must adhere to GDPR.
<https://example.com/policies/4/obligations/5> dct:subject "geographical_area" ;
odrl:action <https://example.com/policies/4/obligations/5/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/5/actions/1> rdf:value <http://purl.obolibrary.org/obo/NCIT_C64950> ; # Follow (adhere to)
odrl:refinement <https://example.com/policies/4/obligations/5/actions/1/refinements/1> .
<https://example.com/policies/4/obligations/5/actions/1/refinements/1> odrl:leftOperand dpv:Context ;
odrl:operator odrl:isA ;
odrl:rightOperand <https://w3id.org/dpv/dpv-legal#EU-GDPR> . # EU-GDPR
## Obligation 6: The use of samples or data from the provider entails the recipient's obligation to make the results of studies conducted with the resource available to the scientific community, in accordance with the agreements with the provider when requesting the samples.
# Translation:
<https://example.com/policies/4/obligations/6> dct:subject "publication" ;
odrl:target <https://example.com/policies/4/obligations/6/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/6/actions/1> ;
odrl:assigner this:Data_Center_01 ;
occe:sharedParty <https://example.com/policies/4/obligations/6/actions/1> .
<https://example.com/policies/4/obligations/6/actions/1> a <http://purl.obolibrary.org/obo/NCIT_C28249>, odrl:PartyCollection ; # Scientist
vcard:fn "Scientists"^^xsd:string .
<https://example.com/policies/4/obligations/6/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C20200>, odrl:AssetCollection ; # Outcome
dct:title "Results of studies"^^xsd:string .
<https://example.com/policies/4/obligations/6/actions/1> rdf:value odrl:share .
## Obligation 7: The use of samples and data from the IPGB entails the recipient's obligation not to publish the results of studies derived from the use of such samples and data before they are communicated to the IPGB.
# Translation:
<https://example.com/policies/4/obligations/7> dct:subject "publication_moratorium" ;
odrl:target <https://example.com/policies/4/obligations/7/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/7/actions/1> ;
odrl:assigner this:Data_Center_01 ;
odrl:informedParty <https://example.com/policies/4/obligations/7/informed/1> .
<https://example.com/policies/4/obligations/7/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C20200>, odrl:AssetCollection ; # Outcome
dct:title "Results of studies" .
<https://example.com/policies/4/obligations/7/informed/1> a <http://edamontology.org/topic_3337>, odrl:Party ; # Biobank
vcard:fn "The Incontinentia Pigmenti Genetic Biobank (IPGB)"^^xsd:string .
<https://example.com/policies/4/obligations/7/actions/1> rdf:value odrl:inform ;
odrl:refinement <https://example.com/policies/4/obligations/7/actions/1/refinements/1> .
<https://example.com/policies/4/obligations/7/actions/1/refinements/1> odrl:leftOperand odrl:event ;
odrl:operator odrl:lt ;
odrl:rightOperand <http://purl.obolibrary.org/obo/T4FS_0000106> . # Publish data
## Obligation 8: Italy.
# Translation:
<https://example.com/policies/4/obligations/8> dct:subject "regulatory_jurisdiction" ;
odrl:action <https://example.com/policies/4/obligations/8/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/8/actions/1> rdf:value <http://purl.obolibrary.org/obo/NCIT_C64950> ; # Follow (adhere to)
odrl:refinement <https://example.com/policies/4/obligations/8/actions/1/refinements/1> .
<https://example.com/policies/4/obligations/8/actions/1/refinements/1> odrl:leftOperand dpv:Context ;
odrl:operator odrl:isA ;
odrl:rightOperand "Italian jurisdiction" . # <https://w3id.org/dpv/dpv-legal#IT>
## Obligation 9: The investigation must be carried out only in the context of medical and scientific research projects approved by an Ethics Committee.
# Translation:
<https://example.com/policies/4/obligations/9> dct:subject "research_use" ;
odrl:target <https://example.com/policies/1/obligations/9/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/9/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/1/obligations/9/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C25474>, odrl:AssetCollection ; # Data
dct:title "Patients' data"^^xsd:string .
<https://example.com/policies/4/obligations/9/actions/1> rdf:value odrl:use ;
odrl:refinement <https://example.com/policies/4/obligations/9/actions/1/refinements> .
<https://example.com/policies/4/obligations/9/actions/1/refinements> odrl:and _:b0 .
_:b0 rdf:first <https://example.com/policies/4/obligations/9/actions/1/refinements/1> ;
rdf:rest _:b1 .
_:b1 rdf:first <https://example.com/policies/4/obligations/9/actions/1/refinements/2> ;
rdf:rest rdf:nil .
<https://example.com/policies/4/obligations/9/actions/1/refinements/1> odrl:leftOperand odrl:purpose ;
odrl:operator odrl:isA ;
odrl:rightOperand <http://purl.obolibrary.org/obo/GSSO_012788>, <http://purl.obolibrary.org/obo/DUO_0000042> . # Medical research / General research
<https://example.com/policies/4/obligations/9/actions/1/refinements/2> odrl:leftOperand <http://purl.obolibrary.org/obo/NCIT_C42615> ; # Approved by
odrl:operator odrl:isA ;
odrl:rightOperand <http://purl.obolibrary.org/obo/SCDO_1000462> . # Research Ethics Committee Decision
## Obligation 10: The provider must receive the results of incidental findings and communicate to the patient , according to his/her informed consent, of any unexpected results derived from any study/research.
# Translation:
<https://example.com/policies/4/obligations/10> dct:subject "return_of_incidental_findings" ;
odrl:target <https://example.com/policies/4/obligations/10/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/10/actions/1> ;
odrl:constraint <https://example.com/policies/4/obligations/10/constraints/1> ;
odrl:assigner this:Data_Center_01 ;
odrl:sharedparty this:Data_Center_01 .
<https://example.com/policies/4/obligations/10/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C20200>, odrl:AssetCollection ; # Outcome
dct:title "Unexpected results"^^xsd:string .
<https://example.com/policies/4/obligations/10/actions/1> rdf:value odrl:share .
<https://example.com/policies/4/obligations/10/constraints/1> odrl:leftOperand odrl:event ;
odrl:operator odrl:gt ;
odrl:rightOperand <http://purl.obolibrary.org/obo/OMIT_0022412> . # Incidental findings
## Obligation 11: The Recipient Scientist must restitute the results to IPGB to allow the interpretation focused on Incontinentia pigmenti disease.
# Translation:
<https://example.com/policies/4/obligations/11> dct:subject "return_of_results" ;
odrl:target <https://example.com/policies/4/obligations/11/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/11/actions/1> ;
occe:sharedParty <https://example.com/policies/4/obligations/11//sharedParties/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/11//sharedParties/1> a <http://purl.obolibrary.org/obo/SCDO_0008688>, odrl:Party ;
vcard:fn "Incontinentia Pigmenti Genetic Biobank (IPGB)"^^xsd:string .
<https://example.com/policies/4/obligations/11/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C20200>, odrl:AssetCollection ; # Outcome
dct:title "Results"^^xsd:string .
<https://example.com/policies/4/obligations/11/actions/1> rdf:value odrl:share .
## Obligation 12: There is a predefined time linked to the closure of the project; after that the forwarded material must be destroyed or returned to the IPGB Biobank.
# Translation:
<https://example.com/policies/4/obligations/12> dct:subject "time_period_of_use" ;
odrl:target <https://example.com/policies/4/obligations/12/targets/1> ;
odrl:action <https://example.com/policies/4/obligations/12/actions/1> ;
odrl:consequence <https://example.com/policies/4/obligations/12/consequences/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/12/targets/1> a <http://purl.obolibrary.org/obo/NCIT_C70699>, odrl:AssetCollection ; # Biospecimen
dct:title "Biospecimens"^^xsd:string .
<https://example.com/policies/4/obligations/12/actions/1> rdf:value odrl:delete, <http://purl.obolibrary.org/obo/NCIT_C62100> ; # Destruction
odrl:refinement <https://example.com/policies/4/obligations/12/actions/1/refinements/1> .
<https://example.com/policies/4/obligations/12/actions/1/refinements/1> odrl:leftOperand odrl:event ;
odrl:operator odrl:gteq ;
odrl:rightOperand <http://purl.obolibrary.org/obo/NCIT_C164420> . # Project conduct
<https://example.com/policies/4/obligations/12/consequences/1> odrl:action <https://example.com/policies/4/obligations/12/consequences/1/actions/1> .
<https://example.com/policies/4/obligations/12/consequences/1/actions/1> rdf:value <http://purl.obolibrary.org/obo/NCIT_C186295> ; # Return to Biobank
odrl:refinement <https://example.com/policies/4/obligations/12/consequences/1/actions/1/refinements/1> .
<https://example.com/policies/4/obligations/12/consequences/1/actions/1/refinements/1> odrl:leftOperand odrl:recipient ;
odrl:operator odrl:eq ;
odrl:rightOperand "Incontinentia Pigmenti Genetic Biobank (IPGB)"^^xsd:string .
## Obligation 13:
# Translation:
<https://example.com/policies/4/obligations/13> dct:subject "user_authentication" ;
odrl:action <https://example.com/policies/4/obligations/13/actions/1> ;
odrl:assigner this:Data_Center_01 .
<https://example.com/policies/4/obligations/13/actions/1> rdf:value <http://schema.org/RegisterAction> . # Register Action