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Index

  1. Overview
  2. Terms of reference
  3. Full end to end process
  4. Research data engineer process

GM Care Record (GMCR) Research Data Engineers - Terms of reference

1. Overview

The Research Data Engineers (RDEs) will have access to the entire de-identified Greater Manchester Care Record (GMCR) and provide extracts of data to analysts working on COVID-related research.

1.1. Definitions

RGG - Research Governance Group - Provides oversight of the uses of the data for research purposes

2. Roles and Responsibilities

The group is responsible for:

  • Working with research teams to determine the feasibility of their research questions.
  • Providing updates and obtaining approval from the RGG
  • Minimizing the data extracted for research groups in line with GDPR regulations.
  • Sharing methodologies between research groups to ensure consistency between projects. This would include:
    • The change over time in the classification of COVID diagnoses as the testing programme was expanded.
    • The reliability of the recording of ethnicity information.
    • Common factors such smoking status, BMI, height, weight, age etc.

3. Membership

Name Role Organisation
Richard Williams Lead Research Data Engineer University of Manchester
Iliada Eleftheriou Research Data Engineer University of Manchester
George Tilston Research Data Engineer University of Manchester

Other members may be added to the group, but this will only be done with the approval of the RGG.

4. Meeting frequency

There will be no formal regular meeting. The RDEs will meet on an ad-hoc bases as and when required through the COVID-19 crisis and in line with the COPI notice this will be reviewed on 31st March 2021.

5. Accountability

The RDEs report into the RGG, which in turn operates under delegated authority of the GM Care Record Secondary Uses Oversight and Scrutiny Group.