Open Data 2.0 (Emergent session): Brain research data sharing and personal data privacy: continued discussion on anonymization + community meeting

[jsheunis]

Brain research data sharing and personal data privacy: continued discussion on anonymization + community meeting

By Stephan Heunis, Emma Bluemke, Gustav Nilsonne, Tonya White, Peer Herholz, and more.

• Theme: Open Data 2.0
• Format: Emergent session

Abstract

We had a successful 1st emergent session on "Open neuroimaging data and personal data privacy: convergence or divergence" and there has been interest in extending the discussion for another session. We therefore propose a follow-up session to discuss a more specific topic (whereas the 1st session was more broad): anonymization of brain research data.

• What does anonymization mean?
• Where are the blurred boundaries between personal, pseudo-anonymous, and anonymous?
• What algorithms are out there to de-identify and re-identify brain research data?
• And what are the associated risks when depending on them?

We will also discuss the broader goal of setting up a community around the topic of brain research data sharing and personal data privacy, building on the momentum of the Open Brain Consent working group.

Useful Links

https://open-brain-consent.readthedocs.io/en/latest/index.html

Tagging @jsheunis @tjhwhite @lzehl @jopasserat @GNilsonne @agt24 @CPernet @PeerHerholz @yarikoptic @cassgvp @DorienHuijser @agt24 @eglerean @robertoostenveld

[yarikoptic]

+1 on having the session!

[PeerHerholz]

I think it would be very important and useful to allow the broader community to be involved as well, one or the other way. Maybe we could send out a tweet asking folks to share their experience, stories and questions!? This would definitely enrich our discussion and make it more "grounded/realistic" etc. .

[jsheunis]

Great idea! Should we finalise the date/time, then tweet and share on mattermost?

[jsheunis]

So the options are (also posted in the Mattermost channel): Friday 9am or 10am UTC. Please give your preference ASAP!

[robertoostenveld]

I have shared my slides on https://www.slideshare.net/RobertOostenveld/ohbm-2020-osr-brain-research-data-sharing-and-personal-data-privacy